Michael L. Weamer is President and CEO of The Marfan Foundation, the only nonprofit
organization in the U.S. that funds research, provides patient support, and conducts
public and medical education to create a brighter future for everyone affected by Marfan
syndrome and related disorders. Michael had previously served as a Board advisor to
The Marfan Foundation and was honored with the Foundation’s Hero with a Heart Award
Marfan syndrome is a life-threatening genetic disorder of the body's connective tissue. It
affects the heart and blood vessels, bones, and eyes. Knowing the signs is the key to
early and accurate diagnosis and life-saving treatment.
Michael joined The Marfan Foundation after 25 years with the American Heart
Association (AHA), where he most recently served as the Executive Vice President of
the Founders Affiliate, a $70 million organization serving the Northeast. Previously, he
was President of the National Society to Prevent Blindness and served as an affiliate
Executive Director of the National Easter Seal Society.
Michael is Chair of the Board of Directors of the New York Society of Association
Executives and serves on the Board of Directors of the Association of Black
Cardiologists. In addition, he has served as vice chairman of the American Society of
Association Executives (ASAE), Treasurer of the Hudson Guild Settlement House and is
a past director of the International Council of Shopping Centers Foundation. Michael
also served as Chairman of Health Power, a nationally unique non-profit organization
committed to minority health improvement.
Michael has received the Inspiration of Excellence, Outstanding Association Executive
and Distinguished Service awards of the New York Society of Association Executives.
In his spare time Michael is a licensed Coast Guard Captain.
Michael is a graduate of Pennsylvania State University with a degree in Human
Development. He and his wife, Karen, have four children, Mollie, Caitlin, Sean, and
Daniel and a grandchild, Max.